Grace's nasal cannula is no longer the humidified high-flow. She still gets 2.0 of oxygen.
She was able to suck from a bottle and whatever milk she doesn't finish they tube feed. She gets 33 cc. which is a little over an ounce and they feed her every 3 hours.
I talked to Dr. Konduri today for an update and he said obviously there is a huge change between today and a week ago and he is so happy with her progress. They finally got the results back from the EEG that Grace had last week Monday.
An EEG is a test of electrical activity of the brain. By looking at the EEG they can get some idea of how the brain is working. The EEG is most useful at telling if there is a tendency to have fits or seizures. EEG is short for electroencephalogram.
The main goals for Grace are to decrease her oxygen and get her eating normally without the tube and taking in more.
I was able to attempt breastfeeding today which I was surprised at. I had been told that she would take to the bottle first to get her used to eating. Apparently since she was a late-term preemie but more that she wasn't eating for 8 days it may take her longer to catch onto this whole process. Thankfully she has proven she knows how to suck with the pacifier. I was able to get her to latch on twice and each time she sucked for about 2 minutes but then promptly fell asleep.
The hard thing about being in the hospital as the nurse explained is that they have scheduled feedings. It isn't as at home where I follow her cues. Here if she doesn't catch on I don't keep working on it but give her a break. I was able to give her some time but then we tried the bottle and she wasn't really thrilled about that either. Basically, she wasn't interested and was perfectly content to sit an look around. But, because of the "schedule" I ended up having to tube feed her and let gravity pull the milk into her belly. We aren't going anywhere at that rate.
But, I am so thankful that she did latch on as that is one step in the right direction.
When I got home I realized how much life moves on no matter if I am at this stand-still feeling stuck in time. John took the kids to 4H and here I am "resting". I probably don't rest as much as I should, I know. When we left the hospital I so much wanted to take my baby and leave. It is hard driving down and back each day. It is hard being with my baby for only 4 - 6 hours each day and having to hand her back to the nurse to cuddle and console. I know that right now she needs their care and I need to be patient and trust the Lord's timing on this. But please pray for me. I am really struggling tonight.